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End of Life Issues

Primary Listings

Put It In Writing - Advance Directives

American Hospital Association site for basics about advance directives (such as living wills and durable power of attorney for health care). Encourages patients to express their preferences for end-of-life care

Resources - Promoting Excellence in End-of-Life Care

The offices of Promoting Excellence in End-of-Life Care are located at the Practical Ethics Center at The University of Montana. Promoting Excellence is a national program of the Robert Wood Johnson Foundation. Tends to be geared to clinicians. Strives to show innovative approaches to palliative care

Survey: Californians' Attitudes toward Death and Dying (2011)

Report from California "Final Chapter: Californians' Attitudes and Experiences with Death and Dying" is based on a survey of 1669 people Oct. 26 - Nov. 3, 2011. Describes people's beliefs about end of life care, preparations, ICU use, and more. California Healthcare Foundation, 31 pages, Feb. 2012

See also Consumer Health Ratings - Ratings, Report Cards and Credentials - Compare Quality  Editor's Pick

See our main page for public reporting of quality ratings and comparisons for individual hospitals, nursing homes, health insurance plans, and other health care services. Check your physician's credentials and doctor's license in this category

Other Helpful Listings

AMA: 271 Clinical Performance Measures for Physicians, 2012 (pdf)  Editor's Pick

The American Medical Association's Consortium for Performance Improvement has agreed on 271 measures in 42 clinical topics, that are supported by evidenced-based clinical guidelines. Topics include diabetes, asthma, COPD, heart care, osteoarthritis, osteoporosis, stroke, pneumonia, emergency care, prenatal testing, cancer screening, smoking, prostate cancer care, ear and eye problems, depression, surgical infection prevention, GERD, end-stage renal disease, chronic kidney disease, substance abuse, wound care and more. Written for medical professionals, but consumers might learn something about appropriate physician care

California Nursing Home, Home Health and Hospice Cost and Quality Ratings  Editor's Pick

CA HealthCare Foundation, a nonprofit philanthropy and UC San Francisco have teamed up to provide this ratings site for California Nursing Homes, Home Health and Hospice organizations. Nursing facilities are rated on staffing, quality and cost and finance measures. Home Health and Hospice are rated on quality measures. This site also serves as a directory for residential care (assisted living) and other senior care programs. From CalQualityCare.org - one of the best

Caregiver Resources - Long-term care at home

Caregiver Resource guide from the nonprofit Family Caregiver Alliance (based in San Francisco) includes a page for finding an in-home service provider. 19 pages, 2008

Eldercare Locator - Search services for independent living  Editor's Pick

US Department of Health and Human Services provides a free public service through the US Administration on Aging, to help seniors and caregivers find resources anywhere in the country. In addition to the website, you may call 1-800-677-1116 on weekdays to speak with someone who can help (English or Spanish)

Hospice - Find a Hospice that signed the Quality Pledge (NHPCO)

The National Hospice and Palliative Care Organization is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the US. Their searchable database helps consumers find a member hospice, including those Quality Partners who have signed the Quality Pledge

Joint Commission Disease-Specific Care - Certified Hospitals

List of Primary Stroke Centers, Stroke Rehab, and other disease-specific care certified organizations in the US. Most are hospitals. Other certified programs include orthopedic joint replacement (hip, knee), COPD (most listed under A for Advanced COPD), sickle cell services, burn center, bariatric surgery, high-risk OB; bone marrow, heart, liver transplants; cancer (including breast, lung, pancreatic, prostate); diabetes; AAA, Alzheimer's, sleep program, wound care, spine treatment program, migraines, Parkinsons disease, ESRD, palliative care, epilepsy, congestive heart failure, heart failure, AMI, pneumonia and more. Long list, may be hard to use because health condition certifications are listed under multiple titles such as "Advanced"

Palliative Care - Provider Program Directory

Hospitals with Palliative Care programs are listed in this directory by the Center to Advance Palliative Care (CAPC) in conjunction with the National Palliative Care Registry. Palliative care specializes in the relief of the pain, symptoms and stress of serious illness

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