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Gene Therapy, Genetics and Genomics

Primary Listings

Family History Tool (hhs.gov)

Tool from the US Surgeon General's office to help consumers create a family health history: Family Health Portrait project

Genes and Gene Therapy (MedlinePlus)

Definition of Gene Therapy, Genetic basics, FAQs, Genomics and personalized medicine plan, pharmacogenetics, proteomics. Read: What Is A Gene? (from Nemours Foundation, kidshealth.org)

GeneTests: US Clinic Search

Voluntary listing of US and international genetics clinics providing genetic evaluation and genetic counseling. Lists services by state; contact information; links to clinic Web sites (if available); and selected clinic staff certifications and credentials. May search by Adult, Pediatric Genetics, biochemical, cancer genetic counseling, preimplantation genetic diagnosis, prenatal diagnosis, or telemedicine

Genetic Tests for Cancer: AHRQ Technology Assessment 2006 (pdf)

Detailed Horizon Scan looks at genetic tests available for cancer prevention, diagnosis or management - those currently available for clinical use, and those that were under development at the time of the January 2006 publication, 128 pages

Genetics - Web Resources for Genetics Information

Extensive set of links from the National Network of Libraries of Medicine, used in their 4-hour class on Unraveling the Mystery of Genetics Information for Consumers. Includes references on cloning, DNA, stem cells, gene therapy, genetic mutation, bioethics and genetics

Genomics - CDC National Office of Public Health Genomics

Find out the definition of Genomics, and read the Fact Sheets from Emory University for subjects such as genetic testing and newborn screening, family history for cancer or mental illness, and prenatal testing. Genetics: the study of inheritance. Genomics: the study of people's genes and how they interact with each other and with the environment

Mountain States Genetics Network

Resources for the diagnosis and management of genetic disorders, including an online directory of genetic support groups. Focus is on services in eight states: AZ, CO, MT, NM, NV, TX, UT and WY

Personalized Health Care - What is It?

Extensive overview from HHS.gov, describing the movement called Personalized Health Care. Reports (go to News Room) describe this field which combines gene-based knowledge with health information technology & knowledge management. Topics include genome-wide association studies, biomarkers, cancer research, genetic testing, molecular profiling, proteomics, computational biology, biologics, pharmacogenomics, and all sorts of terms consumers may eventually understand in the coming decades. Overview report from 2007 is 75 pages; 2008 is 300 pages

Other Helpful Listings

GeneTests: International Clinic Search

Directory of International Clinics in the genetics field, lists services provided in clinics in 27 different countries, including Canada and the United Kingdom (none listed in Mexico), Buenos Aires, Prague, middle east, Japan, Australia, Scandinavia. Funded by the NIH

New York - Clinical Laboratory Evaluation Program (CLEP) - Approved Labs for all types of testing

Laboratories approved for certain specialty testing in New York are listed here by category of testing. Examples include Andrology (fertility assessment e.g. sperm count), Blood transfusion testing, Cellular Immunology, Endocrinology (e.g. thyroid function tests, TSH), HIV screening tests or those for viral identification, DNA testing, Toxicology labs, Trace Element labs, Transplant monitoring, or urine pregnancy testing; many more

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