American Hospital Association site for basics about advance directives (such as living wills and durable power of attorney for health care). Encourages patients to express their preferences for end-of-life care
The resources for Promoting Excellence in End-of-Life Care and Palliative Care are located at The University of Montana. Promoting Excellence was a time-limited national program of the Robert Wood Johnson Foundation. Tends to be geared to clinicians. Strives to show innovative approaches to palliative care
Report from California “Final Chapter: Californians’ Attitudes and Experiences with Death and Dying” is based on a survey of 1669 people Oct. 26 – Nov. 3, 2011. Describes people’s beliefs about end of life care, preparations, ICU use, and more. California Healthcare Foundation, 31 pages, Feb. 2012
See our main page for public reporting of quality ratings and comparisons for individual hospitals, nursing homes, health insurance plans, and other health care services. Check your physician’s credentials and doctor’s license in this category
Caregiver Resource guide from the nonprofit Family Caregiver Alliance (based in San Francisco) includes a page for finding an in-home service provider. 19 pages, 2008
US Department of Health and Human Services provides a free public service through the US Administration on Aging, to help seniors and caregivers find resources anywhere in the country. In addition to the website, you may call 1-800-677-1116 on weekdays to speak with someone who can help (English or Spanish). Very easy to use, by putting in your zip code.
The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the US. Their searchable database helps consumers find a member hospice.
Compare up to 3 hospices at a time at Hospice Compare. Site currently reports 7 quality measures related to patient preferences and quality of care in managing pain and treating symptoms, 2018 data. Consumer satisfaction is also reported, including family training and communication, emotional support, pain management, overall rating of the hospice and willingness to recommend the hospice (national average is 85% would recommend). Site was new in August, 2017, and is updated quarterly by CMS. Search by zip code, state or city. All hospice agencies report, or face financial penalties. Published by the federal government. Excellent website.
Find hospitals that have received certification in stroke care (Primary Stroke Centers or two other stroke designations), palliative care, hip and knee, heart failure, inpatient diabetes, perinatal services or ventricular assist devices in the US. Many are listed as having Advanced programs. Other types of certification may be available. Somewhat hard to use. The Joint Commission is the leading accrediting body for hospitals.
Hospitals with Palliative Care programs are listed in this directory by the Center to Advance Palliative Care (CAPC) in conjunction with the National Palliative Care Registry. Palliative care specializes in the relief of the pain, symptoms and stress of serious illness; it can be provided along with curative treatment.