Primary Listings

Al-Anon and Alateen

Support, hope and help to families and friends of alcoholics. Find a local meeting by using the map search. Or explore electronic virtual meetings

Breast Cancer Hotline: 1-800-977-4121

The ABCD (After Breast Cancer Diagnosis), operates a national Breast Cancer Hotline – a free, confidential resource for information about breast cancer and support; staffed by trained peer counselors who are breast cancer survivors. Call 1-800-977-4121 (English)

Caregiver Resources – Long-term care at home

Caregiver Resource guide from the nonprofit Family Caregiver Alliance (based in San Francisco) includes a page for finding an in-home service provider. 19 pages, 2008

Caregiving in the US, 2015

A survey in late 2014 by the National Alliance for Caregiving and AARP found caregivers average 24 hours a week in caregiving. Nearly 1/3 (32%) of caregivers use paid help from aides, housekeepers, drivers and others. Recipients who had Alzheimer’s, long-term physical problems or age 65+ were more likely to have paid help in addition to their caregiver. Info about caregiver preparation to perform medical or nursing tasks. Detailed report, 2015, 87 pages. (An older study in 2007by the National Alliance and Evercare Health Plans, part of UnitedHealthcare, calculated that family caregivers spend an average $5531 a year caring for older loved ones. Long-distance caregivers had the highest average expenses at $8728 per year.)

CaringBridge – Free Websites for Your Support Group Editor's Pick

CaringBridge offers free websites for your personal support group. Stay in touch by creating a personalized website at CaringBridge, a nonprofit organization that provides support and helps you connect with family and friends during critical illness, treatment and recovery. Password protected for privacy

Choose a Cancer Support Group (American Cancer Society)

Choose a cancer support group through this tool at the American Cancer Society. All different types of support groups and survivor networks for cancer (e.g. type of cancer, stage, peers, etc.) are listed – both online and in-person local groups. The American Cancer Society aims to help consumers with this disease.

Directory of Health Support Groups

Healthfinder Directory of Health Support Groups provides links to support groups on specific conditions and diseases. In addition, you may wish to check your local hospital’s website, for a listing of support groups in your neighborhood

Eldercare Locator – Search services for independent living Editor's Pick

Eldercare Locator is a way to search for services supporting senior independent living. US Department of Health and Human Services provides a free public service through the US Administration on Aging, to help seniors and caregivers find resources anywhere in the country. In addition to the website, you may call 1-800-677-1116 on weekdays to speak with someone who can help (English or Spanish). Very easy to use, by putting in your zip code.

Iowa Senior Centers, Care Management, Alzheimers, Hospice Care, Elderly, Family Caregiver Support

The Iowa Aging and Disability Resource Centers along with its six Area Agencies on Aging provide interactive database to find support services for seniors in each county in Iowa. Services include assisted living, meals (filed under F for Frozen meals, or select home-delivered meals-H), transportation (filed under V for Volunteer transportation) and driving evaluation, chore services, senior centers, Alzheimer support groups,  and many others less common. Shows addresses, telephone and website links for many organizations including area agencies on aging. As an example, one can quickly connect to Mom’s Meals (based in Ankeny) for ordering special diet meals. Good support site – Online Directory of Resources for Seniors & Others Editor's Pick is an online directory of services designed to help seniors and others identify resources within Minnesota. Ideal for caregivers. Click on Housing (for help with senior housing, assisted living), Nursing Homes, food and nutrition, assistive technology, transportation, help in your home, and much more. Can call 800-333-2433 or use the online chat feature Monday-Friday day times.

Patient Rights and Patient Advocacy Resources

Find resources on patient rights and advocacy. Topics include Informed Consent, and End of Life Decisions. Mental Health rights are not addressed. MedlinePlus

PatientsLikeMe Online support: All conditions

Huge resource. Online support communities of patients helping patients with health conditions related to ALS, HIV/AIDS, Multiple Sclerosis; Depression, Bipolar, OCD, PTSD and other mental health conditions; Fibromyalgia, Parkinson’s Disease, more. Search by condition or age & sex. Commercial venture where any person can contribute information, including side effects of prescription drugs. Organization costs covered by partnerships with pharmaceutical and medical device companies, and others. Read the privacy policy. Information is publicly and privately shared

Resources for Caregivers of Seniors

If you’re a caregiver for a senior, find additional resources here. The Aging Life Care Association (formerly the National Association of Professional Geriatric Care Managers) has compiled an extensive list of resources for seniors and their caregivers. Categories include associations, community/social services, government and care management. Consumers can also search for an Aging Life Care Expert

Support Groups for Mental Illness Editor's Pick

Find support groups for mental illness and mental health, through NAMI – The National Alliance on Mental Illness. NAMI has a good web site listing and links local NAMI affiliates across the country for people whose lives have been affected by serious mental illness. Has more than 500 local affiliates

Tips and Guides – Caregiver Action Network (CAN)

Practical help on topics like selecting a nursing home or using home health care, or how to communicate with health insurance people. Caregiver Action Network was formerly National Family Caregivers Association

Other Helpful Listings

Crystal Meth Anonymous

Crystal Meth Anonymous is a 12 step fellowship (free) program for those in recovery from addiction to crystal meth. Meetings are held all over the country. Find a meeting location through the easy-to-use directory under CMA meetings tab. Select map or state lists. Directory covers 7 countries in addition to the US.

Find an Aging Life Care Professional

Find an Aging Life Care Professional, formerly called geriatric care manager. The Aging Life Care Association (ALCA) was formerly the National Association of Professional Geriatric Care Managers, Inc. This national directory is easy to use. Credentials of members listed will vary widely. The credentials of the Advanced Professionals may be the most useful. Not all areas of the US are covered.

Mountain States Genetics Network

Mountain States Genetics Network provides resources for the diagnosis and management of genetic disorders, including an online directory of genetic support groups. Focus is on services in eight states: AZ, CO, MT, NM, NV, TX, UT and WY

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